Fueling the Future for VLCAD Research
Maddie’s Spark Foundation is dedicated to accelerating VLCAD deficiency research while empowering the families living with this rare disease.
Support for Every Step of Your VLCAD Journey
Newly Diagnosed?
Explore essential information to help you understand VLCAD and confidently navigate your first genetics appointment.
Living with VLCAD
Discover what VLCAD is and how individuals and families navigate life with this rare metabolic condition.
VLCAD Resources
Access trusted information, downloadable guides, partner organizations, and essential information to support your VLCAD journey.
Maddie’s Spark Foundation was created to raise awareness, empower families, and accelerate research for VLCAD deficiency, a rare metabolic condition that affects how the body produces energy.
Inspired by Maddie’s bright spirit, we are working toward better treatments and a brighter future for everyone affected by VLCAD.
Advancing VLCAD Research
Research is the key to improving treatments and finding a cure for VLCAD deficiency. Maddie’s Spark Foundation supports scientific research and connects families with the latest developments in VLCAD care.
Help Spark Progress
You can make a difference for families living with VLCAD by raising awareness, advocating for research, or supporting Maddie’s Spark Foundation.
Maddie and the Mighty Spark
Inspired by life with VLCAD deficiency, Maddie and the Mighty Spark was written to help raise awareness about VLCAD deficiency and other fatty acid oxidation disorders, while celebrating the strength and resilience of children who live with them every day. The story encourages meaningful conversations, builds confidence, and reminds children that their spark is what makes them extraordinary.
All proceeds from the book support Dr. Jerry Vockley’s research at UPMC Children’s Hospital of Pittsburgh, focused on VLCAD and related fatty acid oxidation disorders.
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